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 ‘Every Child and Young Person in the Rother Valley Matters’

Down Syndrome is a lifelong genetic condition caused when a person inherits an extra chromosome (chromosome 21) which causes developmental delay and long term learning difficulty. This will require additional support in school, sometimes with a Learning Support Assistant. Advice can be obtained via the Inclusion Support Team, Educational Psychologist, Speech Therapist and Occupational Therapist. Staff may need Makaton training to aid communication.

Reaching Families and Amaze have worked in partnership to produce a series of informative factsheets written by parent-carers for parent carers. These include a series of factsheets on specific conditions designed to be used by parents when they receive their child's diagnosis, to help them get a better understanding of their child's condition and understand what support is available to them locally. This series of factsheets have been reviewed by NHS clinicians. Parent-carers were involved at all stages of the editorial process. (See below)

Support in school usually with an LSA

Advice from the Inclusion Support Team, EP, OT

Makaton may be needed to aid communication

Down Syndrome


Down Syndrome Reaching Families and Amaze Factsheet here

Reaching Families website

AMAZE website

Chichester Down Syndrome Group website

Portsmouth Down Syndrome Association

(Foot Prints) website

Down’s Syndrome Association website

Surrey & West Sussex Down's Syndrome Support Group-Ups and Downs - please contact the membership officer for details - 0333 121 2300

Downs Side Up website

Down Syndrome Educational International website

Down Syndrome OK website